Family Issues In Caring For Patients With Chronic Kidney Failure
Abstract
Introduction: According to the World Health Organization (WHO) and the Global Burden of Disease (GBD) project, kidney diseases significantly contribute to the global disease burden, resulting in approximately 850,000 deaths annually and 15,010,167 cases of disability, which lead to a decline in quality of life. Chronic kidney disease (CKD) patients undergoing hemodialysis face various issues that can cause biological, psychological, social, and spiritual imbalances.
Objectives: This study aims to explore the challenges families encounter when caring for patients with chronic kidney disease.
Methods: Utilizing a qualitative phenomenological research approach, the study involved in-depth interviews with a sample of five validated participants. The research identified four themes: (1) loyalty in caring for CKD patients; (2) feelings of sadness and concern regarding the patient's condition; (3) emotional burden of caregiving; and (4) acceptance of the patient's condition, with a central theme of accepting the CKD patient's status.
Results: The research findings revealed four themes based on data collected from participants 1 to 5: (1) commitment to caring for patients with Chronic Kidney Disease (CKD), (2) feelings of sadness and concern regarding the condition of CKD patients, (3) emotional burden associated with caring for CKD patients, and (4) acceptance of the CKD patients' condition.
The data analysis process, based on the interview results from each participant, will be elaborated upon according to themes, sub-themes, and categories, along with excerpts from participants' statements.
Conclusions: The findings from this study, which comprise four themes, indicate that families caring for patients with Chronic Kidney Disease (CKD) face various psychological challenges that, if not addressed with appropriate coping mechanisms, can adversely affect their mental health status.
Downloads
References
Carolina, P., & Zia, A. A. (2019). Family Support in Improving the Quality of Life of Patients with Chronic Kidney Failure at Dr. Doris Sylvanus Regional Hospital, Palangka Raya. Dinamika Kesehatan: Journal of Midwifery and Nursing, 10(1).
Dila, R. R., & Yuanita, P. (2019). Nursing Care for Clients with Chronic Kidney Failure at Bekasi City Regional Hospital.
Hayulita, S., Arief, B., & Andrian, N. S. (2021). Dominant Factors Associated with the Quality of Life in the Elderly. Afiyah, 5(2). Accessed on June 3, 2021.
Inayati, A., Uswatun, H., & Sri, M. (2019). Family Support and Quality of Life of Chronic Kidney Failure Patients Undergoing Hemodialysis at Ahmad Yani Metro Regional Hospital. Journal of Health Discourse.
Indrayani, & Sudarto, R. (2018). Factors Related to the Quality of Life of the Elderly in Cipasung Village, Kuningan District, 2017. Journal of Reproductive Health, 9(1). Accessed on June 3, 2021.
Jacob, D. E., & Sandjaya. (2018). Factors Influencing the Quality of Life of the Community in Karubaga District, Tolikara Subdistrict, Papua Province. National Journal of Health Sciences (JNIK), LP2M Unhas, 1.
Lisnawati, Purnamasari, A., Nazaruddin, & Zoahira, W. O. A. (2021). The Effect of Home Visits on Improving the Quality of Life of the Elderly: A Literature Review. Anoa Journal of Mandala Waluya Nursing, 1(1), 36–45.
Lubis. (2019). The Experience of Nurses Providing Terminal Care in Medan City. Thesis. Universitas Sumatra Utara.
Mait, G., Muhammad, N., & Hendro, B. (2021). Physiological and Psychological Adaptation in Chronic Kidney Disease Patients Undergoing Hemodialysis in Manado City. Journal of Nursing, 9(2).
Manalu, N. V. (2018). Family Support for the Quality of Life of Chronic Kidney Disease Patients Undergoing Therapy at Advent Hospital, Bandar Lampung. Journal of Nursing, 1(1).
Nazaruddin, H., Heltty, L., Lisnawati, C., Indriani, A., & Apriyanti, A. (2022). Factors Related to the Quality of Life of Chronic Kidney Disease Patients. Nursing Inside Community, 5(1), 16-21. ISSN: 2654-3540 | E-ISSN: 2654-3532.
Nazaruddin, Yusnayanti, C., Purnama, P. A., Purnamasari, A., & Anjarwati, N. (2021). Factors Associated with Sleep Quality Among the Elderly During the COVID-19 Pandemic. Nursing Inside Community, 3(3).
Nurlela, L., CK, S. A., & Utami, S. M. (2017). The Relationship Between Self-Concept and Quality of Life in Cervical Cancer Patients at Dr. Ramelan Hospital, Surabaya. Proceedings of HEFA (Health Events for All), 1(1): 238-468. Accessed on June 3, 2021.
Nursalam. (2013). Research Methodology in Nursing Science. Jakarta: Salemba Medika.
Oktavianti, A., & Sri, S. (2020). Social Interaction Related to the Quality of Life of the Elderly. Integrated Nursing Journal, p-ISSN: 2406-9698 (Print), e-ISSN: 2685-0710 (Online).
Profile of Bahtramas General Hospital. (2022).
Post, M. (2014). Definitions of Quality of Life: What Has Happened and How to Move On. Topics in Spinal Cord Injury Rehabilitation, 20(3): 167-180.
Salim, O. C., Sudharma, N. I., Kusumaratna, R. K., & Hidayat, A. (2016). Validity and Reliability of the World Health Organization Quality of Life-BREF for Measuring the Quality of Life in Elderly Population. Universa Medicina.
Setyaningsih, A. (2017). Quality of Life of Nurses Caring for Tuberculosis (TB) Patients at Dr. Soetomo Hospital, Surabaya. Thesis. Surabaya: Universitas Airlangga. Accessed on June 5, 2021.
Sibuea, R. V., & Mori, A. P. (2020). The Relationship Between Spiritual Needs and Quality of Life in the Elderly, 4(2). Accessed on June 9, 2021.
Sugiyono. (2015). Mixed Methods Research Methodology. Bandung: Alfabeta.
World Health Organization. (2010). WHO Quality of Life-BREF (WHOQOL-BREF). Retrieved from http://www.who.int/substance_abuse/research_tools/whoqolbref/en/. Accessed on May 20, 2021.
Copyright (c) 2024 Anisa Purnamasari, Nazaruddin Nazaruddin, Cece Indriani, Sari Arie Lestari, Zahalim Zahalim, Wa Ode Nova Noviyanti
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
